Good news - it's been 10 days since Kael's last major seizure!! We don't know why we're getting this break..we changed his meds about a month ago, doubled his dose of Blue-Green Algae, and last week we added Mangosteen, a supplement, to his diet...maybe it's one of those. Or maybe we're just finally getting a much needed break after 3 weeks of fever and out of control seizures. Whatever the reason - we'll take it. It's amazing how quickly we get used to no seizures. I start thinking about what life would be like if he was seizure free...how I wouldn't have that sick feeling in the pit of my stomach all of the time, how we could go to the park without having to be right next to him, how I wouldn't wake in the middle of the night, feel his cold skin, and wonder if he had died during the night. But for today, I'm just happy to have a break.
Subscribe to:
Post Comments (Atom)
Thank you for sharing this, Katherine. It's wonderful how open you are about your struggles. I know that I was inspired by meeting your family. I'm sure there are others out there facing similar challenges, or really any challenge at all, that feel the same way. I hope the baby, and the whole family is doing well. So happy for you about the reprieve from seizures!
ReplyDeleteGood to hear that little Kael is getting a break! It is really striking to watch the video and see how calm and quiet everyone remains. What a sweet, precious child! Our prayers continue daily.
ReplyDelete